By Syazana Saraa Abas Bt. Abas 2009728197
The story begins
When others babies are learning to walk and talk, Avery Lynn Canahuati, 5 month old, is fighting for her life with Spinal Muscular Atrophy (SMA) which affects the spinal cord and brains causing her slowly becoming paralyze. Her parents was told that she only have between now and the next 18 month to live. In order to make their daughter’s feels doing normal stuff like other kid, Mike and Laura Canahuati have created a blog to help Avery’s fulfilling those wishes.
Apart from that, it gives them a platform to help and educate the public on the awareness of SMA. From time to time, they will update the blog (http://averycan.blogspot.com/) showing Avery’s journey in crossing out their bucket list of wishes. Avery’s story has become viral through the internet overnight and has touched millions of hearts just by reading her story. In every post posted on the blog, they will not forget to share and promote SMA and encourage the public to donate to help children with SMA disease.
Spreading the SMA awareness
While spreading the awareness of SMA, Avery’s story has catches many attention such Ellen DeGeneres Show as her parent says its Avery’s favorite show and ABC News who gives a positive feedback and supports the cause they are doing. Right now, their blog has reached more than 1 million views and growing day by day. Many other independent bloggers has also response to Avery’s blog and helps spreading the awareness to their readers and followers.
Using social media
With easy access to social media, Avery’s parent decided to use various social media in spreading the awareness by using blog, Facebook, Tweeter, Tumblr, YouTube and linked them to Fight SMA and Muscular Dystrophy Association webpage so that the public can learn more about the disease. The usage of social media is to attain broader target audience and intimately communicate with the public directly. The public can keep up to date on what is happening and feels close to them.
Creating awareness is important to educate and inform the public about the problem faced. By providing enough information and outstanding interest to gain public attention, an ordinary person definitely can bring huge changes. Right now what Mike and Laura Canahuati hopes is for their child to get better and they are just another parent who are trying to shower Avery Lynn Canahuati with lots of love in limited period of time.
References
http://averycan.blogspot.com/
http://www.facebook.com/AverysBucketList
https://twitter.com/#!/AveryBucketList
http://www.tumblr.com/tagged/avery-lynn-canahuati
http://www.youtube.com/user/averysbucketlist
www.fightsma.org
www.mda.org
http://abcnews.go.com/blogs/headlines/2012/04/parents-bucket-list-for-dying-baby-girl-goes-viral/
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